European reference networks (ERNs) have started sharing their knowledge to help more than two million Ukrainian patients suffering from rare diseases, with one expert describing the condition of those still in the country as “catastrophic”.
24 European Reference Networks
(ERNs) is an EU-wide cooperation project which helps to share knowledge and expertise in the bloc in the field of rare or complex diseases.
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“At the moment, these networks bring together around 1,500 specialised healthcare units in all the member states and in Norway,” he told the webinar, held on 23 March.
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