European reference networks (ERNs) have started sharing their knowledge to help more than two million Ukrainian patients suffering from rare diseases, with one expert describing the condition of those still in the country as “catastrophic”.
24 European Reference Networks
(ERNs) is an EU-wide cooperation project which helps to share knowledge and expertise in the bloc in the field of rare or complex diseases.
“At the moment, these networks bring together around 1,500 specialised healthcare units in all the member states and in Norway,” he told the webinar, held on 23 March.
/Passle/60211dc9e5416a0c14bc63d4/SearchServiceImages/2026-07-02-19-49-36-876-6a46c0d0033b1863554b58f9.jpg)
The global issues we face are challenging and interconnected. They can seem insurmountable. But if you know where to look, co-operation, positive change and hope are all around us. Build Beyond Even Better is a project that recognises the progress being made, and the amazing people who are making a difference. Share your own hopes, pledges and projects with #BBEB, or become a contributor.
Please read our BBEB Charter PDF.
/Passle/60211dc9e5416a0c14bc63d4/SearchServiceImages/2026-07-08-13-56-35-041-6a4e5713b71ad0ddcec591bd.jpg)
/Passle/60211dc9e5416a0c14bc63d4/SearchServiceImages/2026-07-02-17-02-49-101-6a4699b92a027cc45247ad98.jpg)
/Passle/60211dc9e5416a0c14bc63d4/SearchServiceImages/2026-07-07-15-51-45-769-6a4d2091387a16e32875763d.jpg)
